Patients and Families

Advance Directive forms – Connecticut
Indicate your end-of-life wishes; create an advance directive.

Medical Orders for Life-Sustaining Treatment (MOLST) forms
MOLST is a medical order that says what care you want at the end of your life. It is intended to be carried with you, and can also be put in your medical record. (MOLST is currently being piloted in Windham and Hartford Counties and will be statewide starting October 1, 2017.)  Q&A about MOLST

End-of-Life Decisions Booklet
This booklet answers tough questions about advance care planning including those about living wills, healthcare power of attorney, and life-sustaining treatments.

Understanding CPR and DNR, by the Connecticut Coalition to Improve End-of-Life Care

Understanding Artificial Nutrition and Hydration, by the Connecticut Coalition to Improve End-of-Life Care

Palliative Care: The Relief You Need When You’re Experiencing Symptoms of Serious Illness, from the National Institute of Nursing Research

Information on Palliative Care
This site, from the Center to Advance Palliative Care, provides clear, comprehensive palliative care information for people coping with serious illness.

The Conversation Starter Kit, by the Conversation Project.  This information is about talking to your loved ones about what you or they want for end-of-life care.

Beginning The Conversation About Death, Dying and End-of-Life Care in Connecticut, by the Connecticut Coalition to Improve End-of-Life Care

  1. Beginning the Conversation
  2. Rights and Choices
  3. Making Decisions
  4. Pain Management
  5. Palliative Care
  6. Hospice Care
  7. Talking with Health Care Professionals
  8. Talking with the Dying Person
  9. Physical Changes when Death is Near
  10. Spirituality at the End of Life
  11. Comforting the Dying
  12. Comforting the Grieving
  13. Talking with Children
  14. About this Booklet
  15. Resources


A Parent's Guide to Enhancing the Quality of Life in Children with Cancer, by the American Childhood Cancer Organization (ACCO)


Connecticut Resources for Parents, compiled by the Connecticut Coalition to Improve End of Life Care:

Ann’s Place: The Home of I Can
Support Groups
39 Old Ridgebury Rd., Suite 17
Danbury, CT 06810
(203) 790-6568

Bereaved Parents of the USA
Connecticut Chapter
8 Ranney Street
Cromwell, CT 06416
(860) 632-1040

The Center for Hope: Family Centers
590 Boston Post Road
Darien, CT 06820
(203) 655-4693

Compassionate Friends
Bridgeport: (203) 380-2818
Northeast: (860) 656-0260

The Family Life Office of the Archdiocese
Bereavement Support Groups
Branford, New Haven, Wallingford
(860) 972-2290

Hartford Hospital Support Services and Programs
Hartford Hospital Jefferson Building # 116
85 Jefferson St
Hartford, CT 06102
Bereavement Support Program
(860) 972-2290

Hospital of Saint Raphael
Healing Grief - Bereavement Support Group
1450 Chapel Street
New Haven, CT 06511
(203) 789-3247

Healing Hearts
Regional Hospice of Western CT
405 Main Street
Danbury, CT 06810
(203) 797-1685; Support group: (203) 792-4422

Leukemia & Lymphoma Society (Connecticut Chapter)
Bereavement Support Groups
300 Research Parkway Suite 310
Meriden, CT 06450
(203) 379-0445

Masonicare Partners Home Health & Hospice: Pedi-Pal Program
East Hartford, CT
(888) 679-9997

Newtown Parent Connection
115 Mount Pleasant Road,
Newtown, CT 06470
(203) 270-1600

Remembrances Grief & Bereavement Programs
New Milford Visiting Nurse Association
68 Park Lane Road (Route 202)
New Milford, CT 06776
(860) 354-2216

United Community & Family Services
47 Town Street
Norwich, CT 06306
(860) 892-7042

Camps for Seriously Ill Children & their Families
The Hole in The Wall Gang Camp, Ashford, CT
Comfort Zone Camp, Litchfield, CT - a bereavement camp for children
Camp Rising Sun, Colebrook, CT - camp specific for children who have faced a diagnosis of cancer