National Resources

National Consensus Project for Quality Palliative Care
The National Consensus Project for Quality Palliative Care promotes the implementation of Clinical Practice Guidelines that ensure care of consistent and high quality, and that guide the development and structure of new and existing palliative care services.

The National Consensus Project for Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care 3rd edition 2013.
The Clinical Practice Guidelines for Quality Palliative Care promote quality palliative care, foster consistent and high standards in palliative care, and encourage continuity of care across settings. Since there is shared responsibility for palliative care across health care settings, the emphasis is on collaborative partnerships within and among hospitals, community centers, hospices, and home health agencies to ensure quality, continuity, and access to palliative care. 

American Academy of Hospice & Palliative Medicine (AAHPM)
The professional organization for physicians specializing in hospice and palliative medicine.  It is dedicated to expanding access of patients and families to high quality palliative care, and advancing the discipline of Hospice and Palliative Medicine through professional education and training, development of a specialist workforce, support for clinical practice standards, research, and public policy.

Center to Advance Palliative Care (CAPC)
CAPC provides healthcare professionals with the tools, training, and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings.  CAPC maintains a state by state report card on access to palliative care in our nation’s hospitals.

Hospice & Palliative Care Organization (NHPCO)
NHPCO is the largest not-for-profit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

National Hospice & Palliative Nurses Association (HPNA)
HPNA is the nation's largest and oldest professional nursing organization dedicated to promoting excellence in palliative nursing care.

National Association of Social Workers (NASW)
NASW is the membership organization for social workers. It has developed standards for social work practice in palliative & end of life care, and offers specialty certification.

National Palliative Care Research Center (NPCRC)
NPCRC is committed to stimulating, developing, and funding research directed at improving care for seriously ill patients and their families.

Report - Strategies for Change, A Collaborative Journey to Transform Advanced Illness Care
A National Quality Forum report on person-centered preferences to guide advanced illness care.

Report - Understanding Palliative Care and Hospice
The report, published in the Mayo Clinic Proceedings, February 2017, is intended as a review for primary providers.  It defines palliative care, describes how it differs from hospice, debunks some common myths associated with hospice and palliative care, and offers suggestions on how primary care providers can integrate palliative care into their practice.


State Resources

Connecticut Coalition to Improve End of Life Care
The mission of the Coalition is to improve the care of people who are dying and their families in the state of CT and to ensure that every individual has information about and access to compassionate, quality end-of-life care.

Connecticut Association for Healthcare at Home (CAHCH)
The Connecticut Association for Healthcare at Home is the largest member group of home health and hospice care leaders championing home-based solutions to foster cost-effective, person-centered healthcare in the setting people prefer most - their own home.

Connecticut Cancer Partnership, Palliative & Hospice Committee
The Connecticut Cancer Partnership is a broad and diverse coalition of individuals and organizations representing stakeholders in Connecticut's cancer community. Its overall goal is to reduce the burden of cancer (incidence, morbidity, mortality, and disability) and to improve the quality of life of people with cancer in Connecticut.

Care Decisions Connecticut Brochure for Patients
This brochure, a basic primer on advance care planning, palliative care, and hospice, is intended for providers to share with patients and families.